Showing posts with label moving day nctriangle. Show all posts
Showing posts with label moving day nctriangle. Show all posts
Monday, September 30, 2013
A Cure for What Ails Many Parkinson's Patients
Recently, I met with a group of team leaders for the upcoming, Moving Day. Moving Day is an event which benefits the National Parkinson's Foundation and has recently been making local headlines as we approach our very first Moving Day event to be held on November 2 at the Koka Booth Amphitheater in Cary. The team kickoff event was everything I hoped it would be; full of tear filled stories, and unflagging optimism in the face of a terrible challenge. At one point, as is often the case, Michael J.Fox's name came up. I have found there to be a general gratitude among the Parkinson's community for the awareness he has brought to a disease which for a long time has lurked in the shadows despite the overwhelming number of people diagnosed. There is, however, some frustration, with Fox's foundation and some of the attention that he has brought to Parkinson's disease. That frustration appears to be that people assume that what Michael J. Fox struggles with is indicative of ALL Parkinson's patients. That is simply not the case. Parkinson's, much like Alzheimer's disease, affects each person in a dramatically different manner. People who don't know this incorrectly assume that everyone with Parkinson's must shake uncontrollably. If the physical manifestation of this assumed characteristic isn't present then the person is driven to make other and even more incorrect asumptions about the severity of the person's Parkinson's or how far the disease has thusfar progressed. Ignorance.
That being said, there are some common themes that many people struggling with Parkinson's experience. Among them, the loss of dexterity. Simple tasks like opening a jar or buttoning a shirt can become incredibly difficult. For former NC State Football Coach, Don Horton, that moment came during an away game when time was of the essence. Fortunately, former NC State Quarterback Russell Wilson, noticed Horton's difficulty buttoning his shirt and stepped in to lend a hand. When Don Horton returned home he opened up about the trouble he had had to his wife, a former children's clothing designer, and an idea was born.
MagnaReady Shirts are men's dress shirts equipped with magnets in place of buttons to make getting dressed easier for people struggling with Parkinson's and any number of other disabilities. From the outside they look like an ordinary dress shirt complete with buttons and all. The best attribute of this shirt is something that you will hopefully never notice.
There is currently no cure for Parkinson's but MagnaReady Shirts offer the next best thing; a daily victory in the battle for independence.
http://www.newsobserver.com/2013/03/29/2788830/husbands-parkinsons-disease-inspires.html
Thursday, August 29, 2013
New Test Could Prove Effective for Early Diagnosis of Parkinson's
Parkinson's disease, much like Alzheimer's disease, is not diagnosed until symptoms appear. Each year, 60,000 Americans visit their physicians with irritating little symptoms such as a tremble in their fingers or lip only to hear those dreaded words: Parkinson's disease. There is no way to predict who will get Parkinson's disease. There is no way to prevent someone from getting Parkinson's disease. There is currently no cure for Parkinson's disease. But new research is now giving hope that there may be an earlier way to diagnose Parkinson's disease. By measuring the amounts of five protein biomarkers in spinal fluid, doctors may be able to identify patients with Parkinson's disease far earlier in the process. "The earlier patients are identified, the more likely that new therapies,
including targeted drugs that are designed to replenish waning dopamine
levels, can be introduced. The hope is that such treatments might
eventually reduce or even prevent some of the disease’s more advanced
and debilitating symptoms."
http://healthland.time.com/2013/08/27/promising-first-test-to-detect-parkinsons-disease/
http://healthland.time.com/2013/08/27/promising-first-test-to-detect-parkinsons-disease/
Thursday, July 25, 2013
Parkinson's Didn't Stop an Astronaut From His Space Walk
This is an amazing story about astronaut Rich Clifford, who was diagnosed with Parkinson's Disease when he was 42 yrs old. He went on to fly in another space shuttle mission and complete a lengthy space walk in spite of his diagnosis. After 15 yrs of staying silent on the subject, he now tours the country to raise awareness for Parkinson's and to tell his own fantastic story.
http://thechart.blogs.cnn.com/2012/11/14/parkinsons-didnt-stop-his-space-walk/
http://thechart.blogs.cnn.com/2012/11/14/parkinsons-didnt-stop-his-space-walk/
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